If I were running a school, I’d have one standing assignment that would begin in the first grade and go on all through school, every week: that each child should bring in something said by an authority — it could be by the teacher, or something they see in print, but something that they don’t agree with — and refute it.
I’m not here for painkiller lecturing. I know certain medication can have negative effects on you, but so does having chronic, unending, awful pain
This is so important!
“Incomparable boredom mixed with infinite fascination.”
“My brain has too many tabs open and I can’t figure out which one is playing that ad.”
“There are five million things I’d like to do right now, but I will spend my entire day deciding that none of them interest me enough.”
“I can do EVERYTHING, but don’t ask me to finish it.“
“Simple tasks are never simple.”
“Accomplishing things you don’t want to is physically painful”
“
My brain is a expensive, quality bicycle that has no breaks and cannot pedal uphill without making random turns.”
“I know what I need to do, I just can’t bring myself to do it”
“Ever went out to go to the store and then accidentally ended up driving to work? It’s like that, but with everything”
trashcans and ashtrays exist for a reason. properly dispose your shit please
And not ever in my fucking garden!! Cigarettes can spread Tobacco Mosaic Virus which attacks a surprising amount of plants. Don’t be rude, dispose of your rubbish considerately.
think of the lil animals… it doesn’t take much to hold onto ur cig butt for a lil while or even just put it back in your pack cmon
and for god’s sakes stop throwing them out of the windows of moving cars
And guys the ocean, just no
social anxiety is realizing you’re lonely, not wanting to be lonely, being handed and opportunity not to be lonely, and still choosing to be lonely because despite every previous indicator that you would be welcome to join in on other people’s fun and stop being lonely, you’re still afraid that no one wants you around
And girls need cold anger. They need the cold simmer, the ceaseless grudge, the talent to avoid forgiveness, the side stepping of compromise. They need to know when they say something that they will never back down, ever, ever.
Ahahahahahahahahahahahahahahahahah I would love to punch those people in the knees for you if I could muster the energy to do anything more than breathe. FUCK those people.
Like honestly, I don’t mind when people message me to ask about my health, because to be honest they are usually asking because they are noticing something similar in themselves which they’ve been told is normal or just “how things are” and that is absolutely not the case for a lot of things. It’s partly why I am very open about my health, but also because I want people to recognize that chronic health and invisible disabilities can and do exist, and often times, those who are suffering with them are suffering in silence because unless your pain can be taken and made into something noble and inspirational for an able bodied person to justify feeling good about themselves and finding the “courage to enjoy life” and go back packing around Europe, people don’t want to fucking hear about it.
And I refuse to let my pain and misery be someone else’s feel good porn. I refuse to let it be their sanctimonious “well clearly I’m a better person that’s why I don’t suffer like this” porn. And I especially refuse to let someone try to tell me that me talking about my health is depressing and my “negative attitude” is likely why I am ill and I should try to think about something else because it’s not funny and no one wants to hear it, because fuck that and the horse it rode in on.
I am not ur free entertainment machine. You don’t get to turn me on and off when you feel like it, or shut me down when I stop being funny. I am a person. This is my blog. And if you can’t handle the fact that the occasionally funny and well written person you followed is going through a hard time and maybe needs a bit of support instead of patronizing, then the unfollow button is right there.
*hugs you*
*points other people at the above post* This.
what she says: I’m fine
what she means: The Sims 4 have added custom gender options to their Create-A-Sim feature in their latest free patch to the main game, meaning transgender sims etc. are available for the first time ever. And I’m honestly so amazed right now? Of course this should have happened sooner but now it actually has happened and history is genuinely being made? You can literally choose between masculine/feminine body type, clothing preference, whether or not they can get pregnant/get others pregnant, how they use the toilet, and other things? This is a really big deal and I honestly don’t know what to say this has made me so happy ❤
The thing about chronic pain is once you’ve had it for long enough you can’t remember what not being in pain felt like. You only recognize it as ‘not as debilitating as usually’ or ‘very much more fucking debilitating than usual’ so you have no grasp anymore of what it’s like to do things without factoring your pain levels in
and people who aren’t in constant pain think that if you’re having a ‘good pain day’ it means you’re not in pain and should be able do to things. But having a good pain day doesn’t mean you’re not in pain, it means you’re in less than excruciating pain. Maybe your pain is low enough that you can ignore it.
But people who don’t live in pain don’t understand that ignoring it takes energy, and even if it’s low enough that we can ignore it doesn’t mean it’s gone and it doesn’t mean we want to go out and do a bunch of things that will make it so bad it cannot be ignored.
[paragraph breaks added for accessibility]
People love to talk about whether or not disabled people can work
but if you can work just fine and your disability is destroying your ability to have a life outside of work (because work takes all your energy and more)
Dead silence. Nobody cares.
File this under, oh you can be active for 4 hours? You can work part-time. Um no, I have to get ready for work (30 min) get to work (15 min) get home from work (15 min) feed myself all day (30 min) maintain myself, my home and my life (15 min, yeah right), which leaves 15 min for work and absolutely nothing else.
This is so accurate, back after I’d relapsed I wanted to try and go in for one class at school so I could still stay in contact with the education system. I let slip during a meeting that I managed to drag myself to that I could manage about 4 hours of activity a week, which the teacher sprang on to mean I was being lazy for just trying to get to 1 hour class. Never matter that it was 30 minutes travel, that I would have to get washed and dressed, that I would probably still need to recover for 3 days from it.
Far too often abled people see the things they do easily as “non activities”, they don’t realise that for many disabled people these things have to be carefully planned and measured, and sometimes they simply can’t be done.
reblog bc the non activities thing seems really important words
I get X number of pain-free steps per day right now, which means that, for large conventions (like SDCC), I need to be in a mobility device. I had someone ask if I used up my steps every day before transferring to the scooter, and look surprised and a little horrified when I said “no, I save them so I can go to the bathroom unassisted.” Like, they had never considered that walking is involved in peeing.
!
Reblogging for the important point that the term “activity” may mean something very different and much broader for a disabled person with a chronic pain or fatigue related condition compared to its meaning for a non disabled person. If you’re tired enough, simply sitting up in a chair rather than lying in bed is an activity that drains energy otherwise usable for other things. A thing I knew from other people with pain and fatigue related conditions, but worth reinforcing for followers who didnt know or had forgotten.
There's a Mirror on the Wall 