People love to talk about whether or not disabled people can work
but if you can work just fine and your disability is destroying your ability to have a life outside of work (because work takes all your energy and more)
Dead silence. Nobody cares.
File this under, oh you can be active for 4 hours? You can work part-time. Um no, I have to get ready for work (30 min) get to work (15 min) get home from work (15 min) feed myself all day (30 min) maintain myself, my home and my life (15 min, yeah right), which leaves 15 min for work and absolutely nothing else.
This is so accurate, back after I’d relapsed I wanted to try and go in for one class at school so I could still stay in contact with the education system. I let slip during a meeting that I managed to drag myself to that I could manage about 4 hours of activity a week, which the teacher sprang on to mean I was being lazy for just trying to get to 1 hour class. Never matter that it was 30 minutes travel, that I would have to get washed and dressed, that I would probably still need to recover for 3 days from it.
Far too often abled people see the things they do easily as “non activities”, they don’t realise that for many disabled people these things have to be carefully planned and measured, and sometimes they simply can’t be done.
reblog bc the non activities thing seems really important words
I get X number of pain-free steps per day right now, which means that, for large conventions (like SDCC), I need to be in a mobility device. I had someone ask if I used up my steps every day before transferring to the scooter, and look surprised and a little horrified when I said “no, I save them so I can go to the bathroom unassisted.” Like, they had never considered that walking is involved in peeing.
!
Reblogging for the important point that the term “activity” may mean something very different and much broader for a disabled person with a chronic pain or fatigue related condition compared to its meaning for a non disabled person. If you’re tired enough, simply sitting up in a chair rather than lying in bed is an activity that drains energy otherwise usable for other things. A thing I knew from other people with pain and fatigue related conditions, but worth reinforcing for followers who didnt know or had forgotten.
(Please tell me you know the reference. I know I am Internet Gramma but I love that stupid fucking movie. *G* )
Anyway, today I received another box of something we in the printing industry have to deal with: Book Returns! Fortunately, I never get very many, which means not a lot of peeps return the book after they buy it.
My (small) Returned Books Pile is now your opportunity! Please take the opportunity, because I was not expecting this.
In my possession, I now have 10 copies of:
1 mint Hardback 1st Printing of Ashlesha ($32)
3 pocketbook-sized 2nd printings of Ashlesha ($9.99)
1 pocketbook-sized 2nd printing of Ashlesha, PG-13/no smut version ($9.99)
5 TPB 1st Printings of Ashlesha that are misprinted on the back (T missing from To) that I’ll sell for $10.00 instead of $18.99 for being effin’ misprints.
(Seriously, how hard is it to align a fucking printer and make sure it’s doing its job? These books were returned only because someone wasn’t paying attention. Grrrr.)
For the cover price plus shipping, I’ll send them to you signed with personalized messages. I don’t get out much and it’s too cost-prohibitive for me to order copies from the printer, so this is basically one of the few opportunities to get a signed book from me.
First come, first paid, first served.
All prices in USD. USPS Priority U.S. shipping is $7.95; USPS First Class International to Canada is $9.95; USPS First Class International Shipping to pretty much everywhere else is $23.95.
(Yes, I also have shinies to finish making, but I need to get the books out of the way! )
Hit me up:https://www.paypal.me/flamethrowerJust make certain you toggle the thing where you tell Paypal you’re making a purchase and supply your shipping address!
If anyone following me has wanted a signed copy of this very awesome book, there’s a chance to get a copy right now!
OMG! I was searching YouTube looking for videos to queue up for later when U came across this “Epic Fan Video” for an imagined Garak action flick. IT IS SO EPIC. I love it. So Hollywood. So dark. He’s an action anti-hero, Batman, bad man, smooth criminal. Just watch it. It has a pitiful number of views. The editing is A+. Give it some love!
it is a harry potter fanfic from like 2009, 160k words, 50 chapters
basically, adult Harry accidentally goes back in time and wakes up on his 11th birthday again, but with all his memories of the future intact
(the way he travels back makes no sense whatsoever but it doesn’t really matter)
harry decides upon 3 goals:
fuck up as much shit as possible
make a shitload of money
save some lives or whatever
it is
H I L A R I O U S
his go-to explanation for how he knows what’s going to happen?
he has a psychic scar
(hermione is SO PISSED about this)
(neville’s like “either he’s psychic, or he’s the greatest conman alive”)
everyone just sort of assumes harry’s insane and he doesn’t do much to dispute this
harry also decides to make it his mission in life to LOSE the house cup every year
“snape is my sole ally”
he also goes out of his way to befriend neville, ginny, and luna earlier this time, so they’re part of the gang throughout and it’s great
even draco is a friend!
(kind of)
(when harry’s not spreading a rumor that draco’s the lovechild of narcissa and snape, anyway)
harry’s motivation for everything he does in this story is basically, “oh, this will be hilarious”
either that or, “it’s probably a tax deductible”
because the way lockhart is written in this story is also amazing and harry ends up teaming up with him to merchandise The Boy Who Lived so he can have cash to burn
(so he gets a LOT of shit done via bribes)
it gets to the point where harry is able to convince everyone that he’s not the heir of slytherin…. because if he was, he’d have found a way to make money off of it
and everyone’s like “yeah ok that checks out”
in this timeline, neville’s boggart isn’t snape…. it’s harry as the minister of magic
harry also decides to make sure cedric lives by quizzing him constantly on what to do if he ends up in a graveyard
harry: by the way, that reminds me – cedric. graveyard.
cedric, not even really listening: run like hell.
the sheer magnitude to which harry does not give a fuck in this timeline is truly awe-inspiring
he mouths off to everyone, and i mean everyone. lockhart, snape, the dursleys, malfoy, friggin’ voldemort
everyone is like “what… what the fuck, harry”
(though by the end of first year it’s more like “… *deep sigh* … fine.
snape is so angry
it’s fucking hysterical and just about everyone ends up better off
Really I can’t recommend this enough. It also does a good job looking at what its like for a grown adult to be in his child body again, dealing with knowing his future wife as a kid and realizing that she’s not going to be the same person again. And doing a, decent job, handling that. And schoolgirl crushes as well.
Jadzia Dax is wholly deserving of a halo so I made her one with her spots in it. I can’t say enough good things about Jadzia. I love her. I love her soooo muuuuucccccchhhhhh
( the second in the line of Star Trek halos. Expect more, these are great stress relief. After all I must have done like 15? for Star Wars(i’ll still be making star wars ones as they tickle my fancy). Trek is equally deserving)
)
There's a Mirror on the Wall 